Sorry I'm late in updating (and I'm saddened there has been no response --I'm struggling and am really just ... I don't know the word.)
Sleep study was rough, but I survived. Will get results in a few weeks, probably.
Saw my dysautonomia doc --my blood pressure and pulse numbers are good, which means the medications are helping, but I'm still having trouble standing for more than a few minutes without having the pre-syncope symptoms and feeling like death. Doc said that I'm likely still having issues with stroke volume (meaning my body is still struggling to move blood up to my upper body). He told me the priority right now is to get my ankle fixed and to then get into rehabilitation (aquatherapy, preferably) --in the meantime, I am to continue doing my home exercises. He hopes that, if we can help get my muscles a little more functional, then that will help my body be able to move blood better. I see him again in December.
I'm having my second ankle surgery on June 17th --just one week after I return with my new service dog. I'm still having a great deal of pain. Bone is rubbing on bone again in the ankle I had surgery on in September. X-rays done a few weeks ago confirmed this. Put off surgery until I get back with my dog. Will be away from my part-time job for a good while again in addition to the pain and difficulty of recovery (this is a much more involved surgery than my last one) --so will be a rough month+.
Power chair is still in the process of going through the hoops to get it approved by insurance. My primary care doc is going to sign the necessary forms today (I had my wheelchair eval at the major rehab center in Houston and they said I need x chair --so now my doctor has to sign off on the form in order for it to be submitted to insurance). Please pray that this goes through. The not-good manual chair I currently have to use is causing significant pain in my shoulders --I should not be pushing a manual chair at all according to my evaluation --I'm risking serious injury. But I don't have much of a choice.
I'm also trying to get my student loans forgiven due to permanent disability. I am not going to recover. Doctors can only treat the symptoms and try to stop further progression in the limited ways they can --but that's it. This is permanent. I'm 29 and it's a struggle just to work my part-time job 8-10 hours a week (working 2 afternoons a week) where I sit at a desk and grade worksheets.
I know God has a reason --but I am really struggling with coming to terms with and accepting this story He has given me to live out. I know I'm in a unique position to encourage and come alongside other people with serious chronic illness. I'm just still going through the process of grieving and processing it all.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18
"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."